Resources for Neurological Conditions
Government Resources
Social Security Administration (SSA)
800-772-1213 (TTY) | www.socialsecurity.gov
The SSA handles retirement disability payments and administers the Supplemental Security Income program (SSI), among other services. The Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provide monetary assistance to people with disabilities. http://www.ssa.gov/disability
CalWORKs
www.benefits.gov/benefits/benefit-details/1229
CalWORKs is a welfare program that gives cash aid and services to eligible needy California families. The program serves all 58 counties in the state and is operated locally by county welfare departments. If a family has little or no cash and needs housing, food, utilities, clothing or medical care, it may be eligible to receive immediate short-term help. Families that apply and qualify for ongoing assistance receive money each month to help pay for housing, food and other necessary expenses.
Healthcare
Medicare
Individuals are automatically enrolled in Medicare after receiving disability benefits for 2 years.
www.ssa.gov/dibplan/dapproval4.htm
www.medicare.gov/people-like-me/disability/disability.html
Medi-Cal
Medi-Cal is California’s Medicaid program. This is a public health insurance program which provides needed health care services for low-income individuals including families with children, seniors, and persons with disabilities.
California Department of Healthcare services:
www.dhs.ca.gov/mcs/medi-calhome/default.htm
Information on eligibility, application process, and services offered through the state’s Medicaid program. Provides a listing of California’s county social services offices.
Benefit Calculator
Disability Benefits 101 (DB101)
DB101 brings together rules for health coverage, benefits, and employment programs that people with disabilities use. These programs may be run by state, federal government, non-profit, or private organizations. Here they help people with disabilities understand their benefits and discuss them under one roof and in plain language.
The Benefit Eligibility Screening Tool (BEST):
The Benefit Eligibility Screening Tool (BEST) helps you find out if you could get benefits that Social Security administers. Based on your answers to questions, this tool will list benefits for which you might be eligible and tell you more information about how to qualify and apply.
Care Giving Services
In-Home Supportive Services (IHSS) Program (Application Hotline)
888-944-4477 | www.ladpss.org
IHSS pays for services that enable eligible individuals who are disabled (including children over 6 years of age) to remain safely in their own homes. Individuals who qualify hire their own provider(s) to assist them with personal care services such as bathing, grooming, dressing and bowel and
bladder care; domestic services such as cooking, housecleaning and laundry; paramedical services such as assistance with medications, suctioning, and catheter care; and accompaniment to medical appointments.
Home- and Community-Based Services (HCBS) Waiver Program
916-552-9400
HCBS waivers provide funding for optional Medi-Cal services such as case management and personal assistance services. California has six HCBS waiver categories that serve specified subgroups of aged, developmentally disabled, physically disabled, and HIV/AIDS Medi-Cal eligible populations. For additional information, contact PASC’s Information and Referral Office at 877-565-4477.
Personal Assistance Services Council (PASC)
877-565-4477 | www.pascla.org
PASC is the public authority for In-Home Supportive Services (IHSS) in L.A. County. PASC operates a Registry to match IHSS consumers and providers. The PASC Homecare Registry is a free and voluntary service that IHSS consumers can use to obtain referrals of homecare providers. Registry providers are referred to consumers based on the consumer’s needs, hours allotment, and geographical location. PASC is committed to improving the IHSS Program and enhancing the quality of life for all people who receive and provide In-Home Supportive Services.
Return to Community
Department of Rehabilitation
213-736-3904 | www.dor.ca.gov
The Department of Rehabilitation assists individuals with disabilities maximize their ability to live independently in their communities and in areas of employment by providing vocational rehabilitation, training, and job placement services, and financial aid.
Independent Living Centers (ILCs)
916-325-1690 | www.cfilc.org
www.dor.ca.gov/ILS/ILC-List.html
ILCs are organizations which provide services that enable individuals with disabilities to live and work independently, attendant referrals, advocacy, peer counseling, and information related to housing and transportation. There are seven Independent Living Centers (ILCs) in L.A. County.
250% Medi-Cai Working Disabled Program
626-854-4892 | www.db101.org
The 250% Medi-Cal Working Disabled Program allows people with disabilities to earn income without losing their Medi-Cal or IHSS benefits. Further information can also be obtained by contacting your local independent Living Center.
L.A. County 250% Medi-Cal Working Disabled (MWD) Program Steering Committee:
PASC participates in a Los Angeles County Cross Agency Steering Committee, which coordinates trainings on the 250% MWD Program. This program allows individuals with disabilities to work and earn up to 250% of the Federal Poverty Level without losing their Medi-Cal and/or IHSS benefits. For more information on the steering committee and/or the trainings provided, contact PASC
Rehabilitation Centers
Northridge Hospital Medical Center
18300 Roscoe Blvd.
Northridge, CA 91328
818-885-8500
Rancho Los Amigos Rehabilitation Center
7601 East Imperial Hwy.
Downey, CA 90242
562-401-7111
Casa Colina Centers for Rehabilitation
255 East Bonita Ave.
Pomona, CA 91767
866-724-4127
Long Beach Memorial
www.memorialcare.org/long-beach-memorial
2801 Atlantic Ave.
Long Beach, CA 90806
562-933-9000
St. Jude Medical Center
101 E Valencia Mesa Dr.
Fullerton, CA 92835
714-871-3280
Loma Linda University East Campus Hospital
25333 Barton Road, Unit 1100
Loma Linda, CA 92354
909-558-6691
Cottage Rehabilitation Hospital
2415 De la Vina
Santa Barbara, CA 93105
805-687-7444
Huntington Memorial Hospital
100 W. California Blvd.
Pasadena, CA. 91105
626-397-5000
Keck Medical Center of USC
1500 San Pablo
Los Angeles CA 90033
800-872-2273
UCLA Medical Center
1131 Wilshire Blvd. Suite 100
Santa Monica, CA 90401
310-319-DISK
Sharp Memorial Hospital
Sharp Rehabilitation San Diego
www.sharp.com/rehab/spinal-cord-injury.cfm
7901 Frost Street
San Diego, CA 92123
858-939-3400
VA Long Beach Health Care System
5901 E 7th St.
Long Beach CA 90822
562-826-8000
VA San Diego Health Care System
3350 La Jolla Village Drive
San Diego, CA 92161
800-331-8387
Spinal Cord Injury Grants & Financial Assistance
Triumph Foundation www.Triumph-Foundation.org
Triumph Foundation has many options to help SCI survivors to live a quality life, increase independence & self efficacy, get needed equipment & supplies, and reintegrate back into the community. Thru its Keep Moving Forward grant program, Triumph Foundation helps people acquire adaptive equipment, perform home modifications for wheelchair accessibility, continue therapeutic exercise, participate in recreational activities & wheelchair sports, and gain employment.
Application is included within Flashdrive contents,
Email for more information: [email protected]
Spinal Cord Injury Fund www.scispecialfund.org
The Mission of the SCI Special Fund is to help California residents with spinal cord injuries maximize their independence in order to achieve life changing results. Examples may include but are not limited to the following: Assistance with physical therapy or other medically related procedures, Assistive technology, equipment, transportation, education, and employment
Nancy A Quarles M.RA.
Phone: (714)547-6308 x333
Email: [email protected]
Grant application info:http://www.scispecialfund.org/elig.aspx
Grant application: http://www.scispecialfund.org/sci_form.pdf
The Travis Roy Foundation www.travisroyfoundation.org
The Travis Roy Foundation is dedicated to enhancing the life of spinal cord injured individuals and families by providing adaptive equipment and to finding a cure through increased funding of research, resulting in self-reliance and the ability to be as independent as possible.
Grant Info: http://www.travisroyfoundation.org/grants/
Application: http://www.travisroyfoundation.org/wp-content/uploads/forms/grantapp_individual.pdf
Spinal Cord Opportunities for Rehabilitation Endowment (SCORE) www.scorefund.org
SCORE aims to financially assist young people who have been injured while participating in sporting events or athletic recreation. SCORE endeavors to improve the quality of life for people with a spinal cord injury, assisting with the substantial out-of-pocket costs associated with obtaining the best medical care, home amenities and transportation. The end goal is to facilitate rehabilitation and independent living.
Application Info: [email protected] (323) 655-8298
Joni and Friends www.joniandfriends.org
Joni and Friends is a Christian non-profit organization that reaches out to people affected by disability around the world. The Joni and Friends International Disability Center (IDC) serves as the administrative center for their ministries which provide outreach to thousands of families affected by disability around the globe. The Joni and Friends Christian Institute on Disability (CID) was established to provide a firm biblical worldview on disability-related issues.
Grant Info: http://www.joniandfriends.org/resources.php
The Bryon Riesch Paralysis Foundation www.brpf.org
The Bryon Riesch Paralysis Foundation’s (BRPF) works within the paralysis community providing charitable grants to help make life easier for people suffering from paralysis. Equally important, the BRPF provides scholarships to individuals suffering from paralysis or families with a parent dealing with a neurological disorder.
Grants-
Charitable grants are reviewed quarterly in January, March, June, and September. Funds are limited and we generally cannot support charitable grants over $10,000. Request should be for a specific item. Requests from Wisconsin residents are given precedence but are not limited to the state. To apply for funding:
Grant Info: http://www.brpf.org/Grants/ApplicationCharitableGrants.html
Scholarships-
A $1,000 to $2,000 scholarship shall be awarded to two to three individuals with neurological disabilities, or the child of that person, for post high school education.
School Scholarships Info: http://www.brpf.org/Grants/ApplicationScholarships.html
Go Out And Live Successfully (G.O.A.L.S.) www.goalsinc.net
G.O.A.L.S., Inc. (Go Out And Live Successfully!) is a foundation dedicated to helping people with spinal cord injuries better access their environment.
Grant Info: http://www.goalsinc.net/funding.asp
Application: http://www.goalsinc.net/fundingapp.asp
Be Perfect Foundation www.beperfectfoundation.com
The Be Perfect Foundation provides direct financial and emotional aid to SCI victims in need and promotes positive recovery through exercise-based therapy and complete wellness.
Grant Info: http://www.beperfectfoundation.com/sci_help.html
Application: http://www.beperfectfoundation.com/pdf/sponsorship_application.pdf
The Chanda Plan Foundation www.TheChandaPlanFoundation.org
The Chanda Plan Foundation’s mission is to improve the quality of life for people with physical disabilities through education and grants to access complementary and alternative healthcare.
Grant Application: http://www.thechandaplanfoundation.org/ProgramApplication.pdf
NTAF (National Heart Assist and Transplant Fund) www.ntafund.org
To help transplant and catastrophic injury patients and their families afford critical but uninsured medically related expenses through fundraising guidance and patient support, as well as financial and other resources.
Patients must complete an application for assistance that demonstrates their financial need. Once the application has been approved, a Fund Request Form may be completed by the patient (or approved person) for reimbursement or direct payment of medical expenses. Appropriate documentation must accompany all requests for assistance.
Grant Info: http://www.ntafund.org/services/catastrophic-injury-patients/
http://www.ntafund.org/services/catastrophic-injury-patients/paying-uninsured-expenses.cfm
http://www.ntafund.org/services/catastrophic-injury-patients/getting-started.cfm
Sam Schmidt Paralysis Foundation www.samschmidt.org
The Sam Schmidt Paralysis Foundation helps individuals overcome spinal cord injuries and other neurological disorders by funding scientific research, medical treatment, rehabilitation and technological advances.
Provides Quality of Life Grants and School Scholarships
Grant Info: http://samschmidt.org/grants
Apply in writing by November. Grants issued in February.
The Alan T Brown Foundation to Cure Paralysis www.ATFB.org
The Alan T Brown Foundation to Cure Paralysis (ATBF) supports scientific and medical research worldwide, and has recently directed its focus to Quality of Life issues for people living with motor disabilities and paralysis. ATBF provides help to those who are pursuing quality-of-life goals, such as participating in wheelchair sporting activities, driving a motor vehicle, pursuing academic degrees, seeking employment, and more.
Grant Info: [email protected]
Kate Kimberly Foundation www.katekimberlyfoundation.org
The Kate Kimberly provides Individual Life Grants and Organization Grants to qualified applicants to fund adaptive sports equipment. The KKF Grant Committee accepts and reviews Individual Grant applications twice per year except in rare cases involving extenuating circumstances. Funds are limited to grant awards typically ranging from $1,000 to $4,000. Individuals submitting the grant application are required to submit estimates from potential suppliers or programs. Grants are distributed directly to the supplier of the desired equipment or, for scholarships, directly to the desired program. Examples of eligible items include:
- upgrades and maintenances of wheelchairs and sports chairs;
- tuition/costs for adaptive programs or adventures;
- exercise equipment;
- adaptive sports equipment
Phone: 303-410-1310
www.katekimberlyfoundation.org
Challenged Athletes Foundation (CAF) www.challengedathletes.org/
It is the mission of the Challenged Athletes Foundation to provide opportunities and support to people with physical disabilities so they can pursue active lifestyles through physical fitness and competitive athletics. The Challenged Athletes Foundation believes that involvement in sports at any level increases self-esteem, encourages independence and enhances quality of life. Grant applications are posted September 1st, ends December 1st
Sports Equipment Grants: http://www.challengedathletes.org/programs/access_for_athletes.htm
Kelly Brush Foundation www.kellybrushfoundation.org
The Kelley Brush Foundation works to support research to treat and cure paralysis due to traumatic spinal cord injury (SCI). They work to improve the quality of life for individuals living with SCI by purchasing adaptive athletic equipment for those with financial limitations.
Provides Sports Equipment Grants
Grant Info: http://kellybrushfoundation.org/grant.shtml
Application: http://kellybrushfoundation.org/BrushFoundGrantIndApp10.pdf
Change a Life Foundation www.changealife.org
The Change a Life Foundation provides financial help to individuals and families who, through no fault of their own, have experienced an injury, illness, or catastrophic life event, and who are suffering financial hardship, by providing support for critically needed direct services that promote their self-sufficiency and improve their quality of life.
Grant info: http://www.changealife.org/how_to_apply/application_faqs.aspx
Application: http://www.changealife.org/how_to_apply/default.aspx
HeadNorth Foundation www.headnorth.org
To support the immediate physical and psychological transitional needs of the individual and family following the spinal cord injury. This includes, but is not limited to, assistance with food, lodging, transportation and access to essential resources. To be eligible you must be a U.S. citizen & legal resident of greater San Diego County
Grant application: http://www.headnorth.org/sites/default/files/pdf/HDN_ResponseTWOApplication2011.pdf
Cindy Donald Dreams of Recovery Foundation www.dreamsofrecovery.org
Gives individuals with spinal cord injuries and/or brain injuries grants for medical equipment and grants to participate in therapy.
Grant application: http://www.dreamsofrecovery.org/files/Dreams%20of%20Recovery%20Official%20ApplicationFormPacket_m.pdf
Be Extraordinary Program of InvoTek www.invotek.org/giving/about-be-extraordinary
InvoTek develops technology and computers for people with disabilities. People with a disability contact InvoTek and tell them what they want to accomplish — go to school, work, manage their family’s finances, etc. If InvoTek accepts them in this program, they make a professional video on that person there is a section of their website called “People who need funding” where people can donate to their cause.
First Hand Foundation https://applications.cerner.com/firsthand/default.aspx
First Hand assists individual children with health-related needs when insurance and other financial resources have been exhausted.
Grant Application:https://applications.cerner.com/firsthand/FirstHand_1a.aspx?id=28729
Phone: 816.201.1569
Wheel to Walk Foundation www.wheeltowalk.com
Helps children under the age of 21 obtain products and services denied by their insurance companies. The foundation distributes funds directly to providers for any medical equipment, braces, gait trainers, therapy tricycles,
shower chairs, etc. that is not covered by insurance. Email or call to request an application.
503-257-1401
Grant Application: http://www.wheeltowalk.com/index_application.htm
Modest Needs www.modestneeds.org
Gives small one-time grants to individuals who do not qualify for public assistance but are financially needy. Grants go for car repairs, utility bills, etc. and should be for under $1,000. The average grant is $300.
Phone: 212-463-7042
Fighting Back Scholarship Program Inc. www.fightingbacksp.org
Provides financial assistance for post-rehabilitative exercise to individuals who have suffered a life changing illness or injury.
Phone: 610-688-4066
Email: [email protected]
The Abilities Fund www.abilitiesfund.org
The Abilities Fund is the first nationwide nonprofit community developer and financial institution focused exclusively on expanding entrepreneurial opportunities, including access to capital, for people with disabilities. The Abilities Fund is committed to the economic advancement of people with disabilities and devoted to the fullest expression of their entrepreneurial spirit in all its diversity, strength and boundless originality. They do this by providing a unique combination of financial products, training, technical assistance services and advisory supports to individuals with disabilities. Abilities Fund does not loan money directly, but supports business ownership for people with disabilities through training and advisory services.
Through the Looking Glass www.lookingglass.org
Offers college scholarships to high school seniors or graduates who have at least one parent who is disabled.
800-644-2666
Kate Zee Memorial Scholarship www.disabilitytravel.com/windmills.htm
Prior to her death Kate established a scholarship fund within her corporation to provide free travel opportunities to disabled travelers who would otherwise never have an opportunity to see the world. The proceeds from her book sales as well as donations and contributions will fund this travel scholarship. 800-846-4537
Mobility Works Foundation www.themobilityworksfoundation.org
The MobilityWorks Foundation is a non-profit organization that will provide financial assistance and or equipment to selected individuals requiring adaptive vehicles or driving aids. The Foundation’s goal is to make the world accessible for physically challenged individuals and families. The Foundation will provide financial assistance and or equipment to selected, qualified applicants requiring adaptive vehicles or driving aids.
M.O.R.G.A.N. Project www.themorganproject.org
Support for parents of special needs children including equipment and grants.
Road 2 Recovery www.road2recovery.com
Provides financial assistance to AMA licensed professional motocross/supercross individuals who sustain career-ending injuries and can’t support themselves. Please contact them for more details.
http://www.road2recovery.com/support.asp
Phone: 480 276-1131
Email: [email protected]
Tinia Q. Cade Foundation www.cadefoundation.org/page.php?id=4
Provides up to $10,000 per funded family to help with costs of domestic adoption and medical fertility treatment. The only restrictions for applying are:
1) You MUST have a diagnosis of infertility from your doctor
2) You MUST be a legal permanent US resident.
Email Jennifer at [email protected] for the application https://www.123signup.com/register?id=vmjvq
Access 2 Independence www.a2isd.org
Assists with transition back into the community by helping with Employment, Assistive Technology, Housing Resources, Community Integration, Information and Referral, Personal Assistance, and Peer Counseling. Including a $1,000 home accessibility grant for disabled.
Application: www.accesstoindependence.org/programs-services/transition
Phone: (619) 293-3500
Athlete’s Recovery Fund www.athletesrecoveryfund.com
Assists SCI who acquired their injury during an extreme sport granting funds for rehabilitation, equipment, long-term disability and educational scholarships.
Application: http://www.athleterecoveryfund.com/apply.html
[email protected]
Disability Dreamweavers www.disabilitydreamweavers.org
The mission of Disability Dream Weavers is to fulfill the dreams of persons with disabilities and enhance their quality of life. Their program provides funding for purchasing equipment.
Application: [email protected]
Phone: (619) 449-4893
The Western University of Health Sciences www.westernupcc.com
Offers highly discounted dental care. The Dental Center team includes highly skilled general dentists as well as specialists in several areas. Patients are seen by appointment, but prompt emergency care is also available.
Please call (909) 706-3910 for more information.
Locations:
PCC- Pomona
795 E. Second Street
Pomona, California 91766-2007
PCC- Rancho Cucamonga
8112 Milliken Avenue
Rancho Cucamonga, CA 91730-7472
ABC Medical- Making a Difference Scholarship http://www.abc-med.com/scholarships
ABC Medical offers semi-annual scholarships, divided into the following three categories: Adaptive Sports, Scholar Athletes, and Making a Difference. The Adaptive Sports scholarship will be divided by age group (Junior, College, Adult) and will be awarded to individuals who represent good sportsmanship, display continuous respect for themselves and others, and display leadership characteristics on their adaptive sports team. The Scholar Athlete award will be given to individuals in need of financial assistance for their college tuition. The Making a Difference scholarship will be given to individuals that are trying to improve their own lives or improve the lives of others around them. The amounts will vary, are awarded at the sole discretion of the Scholarship Committee, and will be awarded in June and December.
Application: http://www.abc-med.com/sites/abc/files/Scholarship%20Application.pdf
Wheels With Wings http://wheelswithwings.org/grants
Wheels With Wings can provide financial support to individuals who have suffered a spinal cord injury and are in need of services or equipment. From wheelchairs to vehicle and home modifications to rehabilitation – Wheels With Wings offers grants for those in need.
Application: http://wheelswithwingsfoundation.org/wp-content/uploads/2012/10/WWW-Grant-Application.pdf
AT Network http://www.dds.ca.gov/AT/at_network.cfm
The Department of Rehabilitation, in conjunction with Assistive Technology (AT) users, created the AT Network which maintains a database of AT resources and providers in California, and can help locate sources of AT for specific disabilities. Referrals are made to groups that provide guidance about AT and to potential AT funding sources.
California Assistive Technology Exchange (CATE) www.atnet.org
The Assistive Technology Loan Guarantee Program assists persons with disabilities or their employers, to purchase durable equipment, adaptive aids and assistive devices in order to obtain or maintain employment or to live more independently. This program provides loans at moderate interest up to a maximum of $20,000.
For more information about the California’s AT Network, call:
(800) 390-2699
website: www.atnet.org
Ralph Braun Foundation www.RalphBraunFoundation.org
The Ralph Braun Foundation was created for a simple purpose: to assist those with mobility needs through education, information and product acquisition. They offer funding for wheelchair accessible vans and modifications.
180 Medical College Scholarship Program http://www.180medical.com/scholarships
180 Medical is honored to have ascholarship program to help those withspinal cord injuries, spina bifida, transverse myelitis, and/or a neurogenic bladder. Realizing the financial burdens that exist for many of these families, we’ve developed the 180 Medical Scholarship Program to honor these young adults who pursue goals of higher education. Five $1,000 college scholarships Awarded each year.
Application: http://www.180medical.com/uploads/docs/scholarships/180%20Medical_2013%20Scholarship%20Application%20Form.pdf
Friends of Disabled Adults & Children (F.O.D.A.C.) www.fodac.org
FODAC is a statewide and national provider of home health care equipment—mobility aids and daily living devices for people with disabilities and the newly injured. FODAC’s Ramps for Champs programs builds home ramps and makes other modifications. FODAC currently has special funding for certain recipients based on location and income.